Ask. Dr. Dennis Drayna from the NIH about Genetics and Stuttering (Ep. 500)

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Dennis Drayna, Ph.D.

Dr. Dennis Drayna joins Peter Reitzes for this special Ask the Expert episode to answer listener questions on genetics and stuttering. Thanks to the NIH for promoting this milestone episode!

On today’s episode Dr. Drayna is asked to discuss wide range of questions and topics including his research, advice to physicians, if genetics may be linked to stuttering severity and covert stuttering, the reality of gene-based therapies, related NIH research, how genetics and the environment interact, the inheritability of stuttering, genetics and possible subgroups of stuttering, the replicability of his research and much more. Dr. Drayna discusses a forthcoming publication on using mice to explore the genetics of stuttering.

Dennis Drayna, Ph.D., is Senior Investigator at the National Institute on Deafness and Other Communication Disorders at the National Institutes of Health. Read more about Dr. Drayna at the NIH website here. Dr. Drayna has appeared four other times on StutterTalk. Those episodes are archived here.

    Each Moment of Stuttering Can Be a Huge Success: What I Wish My SLP Knew about Stuttering (Ep. 499)

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    Robert Dellinger, M.S., CCC-SLP

    Robert Dellinger joins Peter Reitzes to discus what he wishes his speech-language pathologist (SLP) knew about stuttering. Mr. Dellinger explains that often when school age children who stutter are “fluent” it is usually not the result of therapy, but due to issues such as variability. Robert explains that “fluency” has little use when a student is not able to say what they want, when they want to say it. Mr. Dellinger is asked to discuss IEP goals and to offer advice to SLPs who may be uncomfortable working with children who stutter. Check out Robert’s website here.

    Robert Dellinger, M.S., CCC-SLP is a school-based speech-language pathologist in Raleigh, N.C., and a person who stutters. He works in an elementary school and consults with colleagues in complicated fluency disorders cases at the elementary, middle, and high school levels. Rob is an active member of the National Stuttering Association chapter in Raleigh and contributes to the local Teens Who Stutter (TWST) group. This spring, Dellinger presented at the North Carolina Speech, Hearing and Language Association convention on the topic, Children Who Stutter – Beyond ‘Speech Tools’: A Multidimensional Approach to a Complex Disorder.

    As discussed on air, here is the flier to the Cary, NC FRIENDS one day conference on March 7, 2015.

      What I Wish My SLP Knew about Stuttering (Ep. 498)

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      Jack Henderson, M.S., CCC-SLP

      Jack Henderson joins Peter Reitzes to discuss what he wishes his speech-language pathologists (SLPs) had known about stuttering. Mr. Henderson shares that building positive relationships with students is extremely important. Jack urges SLPs not to “jump over” this important aspect of treatment. Mr. Henderson shares his student centered approach in which the SLP and child work together to determine the goals and focus of treatment.

      Jack Henderson, M.S., CCC-SLP is a person who stutters and a speech-language pathologist in the Robertson County (TN) School District. He also is co-director, alongside Dr. Ellen Kelly, of Vanderbilt Bill Wilkerson Center’s Summer Camp for Children who Stutter. He resides in Nashville, TN. Check out Jack’s stuttering blog.

      As discussed on air, here is the flier to the Cary, NC FRIENDS one day conference on March 7, 2015.

        What I Wish My SLP Knew about Stuttering (Ep. 497)

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        Elana Kahan, M.S. CCC-SLP

        Elana Kahan joins Peter Reitzes to discuss what she wishes her speech-language pathologists (SLPs) had known about stuttering. Elana and Peter begin by discussing their strong concerns regarding informed consent for preschoolers who stutter (this topic was raised on StutterTalk episode 483). Then Elana is asked to look back at her childhood speech therapy and to discuss what she wishes her SLPs knew about stuttering. Elana share about her frustration with years and years of SLPs giving her fluency workbooks to practice her speech. Elana also remembers fondly a high school SLP who was a great listener and asked Elana what she wanted to work on in speech therapy. Peter discusses concerns about the “conspiracy silence” and how this may be made even worse when SLPs assign “fluency” tools to children without talking openly to the same children about stuttering.

        Elana Kahan, M.S. CCC-SLP is a person who stutters and a speech language pathologist in the New York City Department of Education.  Elana is also the chapter leader of the long Island NY Chapter of the National Stuttering Association. When not at work, Elana enjoys spending time with her husband, 8 month old son, and crazy dog.

          What I Wish My SLP Knew about Stuttering (Ep. 496)

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          Sara MacIntyre M.A., CCC-SLP

          Sara MacIntyre joins Peter Reitzes to discuss what she wishes her speech-language pathologist (SLP) had known about stuttering. Sara shares that she wished her SLP knew to tell her that stuttering is not your fault. During the conversation, Sara and Peter discuss passing as fluent, how the field feels to be sanitizing stuttering (using the word fluency instead of stuttering), the importance of talking openly about stuttering during treatment, how good professional development can really make a difference for SLPs learning about stuttering and so much more.

          Sara MacIntyre, M.A., CCC-SLP is a person who stutters, a speech-language pathologist at the American Institute for Stuttering (AIS) in New York City and teachers at Mercy College. Sara’s excellent chapter, Passing as Fluent, can be found in the StutterTalk book, Stuttering: Inspiring Stories and Professional Wisdom.

            Real Enough: Virtual Reality with People Who Stutter

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            Shelley Brundage, Ph.D., CCC, BRS-FD

            Shelley Brundage joins Peter Reitzes to discuss her new study, Real Enough: Using Virtual Public Speaking Environments to Evoke Feelings and Behaviors Targeted in Stuttering Assessment and Treatment, which is in-press at the American Journal of Speech-Language Pathology (AJSLP). During today’s episode Dr. Brundage shares that she believes they are ready to begin treating people who stutter with virtual reality.

            Shelley Brundage, Ph.D., CCC, BRS-FD is an Associate Professor and Graduate Program Director in the Speech and Hearing Science department at George Washington University in Washington DC. Dr. Brundage is currently the Chair of the International Fluency Association’s Membership Committee.

            stuttering, StutterTalk, Copyright 1996, Virtually Better, Inc.

            Copyright 1996, Virtually Better, Inc.

            Dr. Brundage’s study discussed on air today was authored with Adrienne B. Hancock.

            Links:

              Is There a Best Stuttering Treatment? (Ep. 494)

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              Craig Coleman

              Craig Coleman joins Peter Reitzes to answer the question Is there a best stuttering treatment? 

              During today’s episode, Mr. Coleman is asked about a number of comments made about stuttering by Carrie Clark, a speech-language pathologist, on her podcast and on a video. Topics include:

              • Is there a best stuttering treatment?
              • Is there such a thing as typical or normal stuttering?
              • Does everybody stutter?
              • Does the American Speech-Language Hearing Association support and back specific stuttering treatments?
              • Can parents respond to stuttering in ways that “will make sure…that stuttering does not become a bigger problem for your child”?

              CRAIG COLEMAN, MA, CCC-SLP, BCS-F is an assistant professor at Marshall University and a Board-Certified Specialist in fluency Disorders. Mr. Coleman is currently serving as coordinator of ASHA SIG 4 (Fluency) and as a member of the ASHA ad-hoc committee to revise the scope of practice in speech-language pathology. Craig is an adjunct instructor at Indiana University of Pennsylvania and Co-Director of the Stuttering U. summer program for children who stutter, their families, and SLPs.

              Selected links from today’s episode:

                Strangers “Helping” With Stuttering When You Didn’t Ask (Ep. 493)

                StutterTalkBTeamCARYN HERRING, JOEL KORTE and ROISIN MCMANUS of the Stuttertalk B Team kick off the show by having Joel talking about his new adventures in fatherhood. Later, Caryn shares some of her experiences in an environment where nobody knows her or her stuttering story. This evolves into a conversation about people trying to “help” you with your stuttering when you don’t necessarily want it.

                  Stuttering Treatment: Much More than Fluency (Ep. 492)

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                  Dr. Heather Grossman

                  Heather Grossman joins Peter Reitzes to discuss stuttering treatment at the American Institute for Stuttering and using a comprehensive approach which focuses on reducing fear, talking openly talking about stuttering, advertising stuttering, voluntary stuttering, mindfulness, using speech tools to reduce the impact of stuttering and much more. Dr. Grossman discusses a treatment approach which is clearly about much more than “fluency” or stuttering less. Heather shares how her speech therapy approach has evolved over the years as a result of volunteering for self help organizations, listening to people who stutter and working in the field. We discuss the pros and cons of telehealth (sometimes called Skype treatment), the future of speech therapy and much, much more.

                  Heather Grossman, PhD, CCC-SLP, BRS-FD, is Clinical Director at the American Institute for Stuttering (AIS). Dr. Grossman has worked with children and adults who stutter for over 25 years and was among the first select group of speech-language pathologists to receive board recognition as a specialist in the treatment of fluency disorders from ASHA (American Speech-Language-Hearing Association). Heather is extremely active in the stuttering self-help community.

                    Remembering Gerald Siegel (Ep. 491)

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                    Gerald M. Siegel

                    Walter Manning and Robert Quesal join Peter Reitzes to remember Gerald M. Siegel. Dr. Siegel passed away on November 17, 2014 at the age of 82. Today on StutterTalk we remember Dr. Siegel by discussing his memoir Academic and Personal Reflections on a Career in Communication DisordersWe discuss accountability (a precursor to evidence based practice) in speech-language pathology, Dr. Siegel’s work in operant conditioning, loss of control in defining stuttering and so much more.

                    ROBERT QUESAL, Ph.D., CCC-SLP is a person who stutters, a professor emeritus of Communication Sciences and Disorders at Western Illinois University, a fellow of the American Speech-Language Hearing Association (ASHA) and a retired board certified specialist in fluency disorders.

                    WALTER MANNING, Ph.D., is a person who stutter and a professor in the School of Communication Sciences at The University of Memphis. Dr. Manning is a board certified specialist in fluency disorders, a fellow of the American Speech-Language Hearing Association, and has published more than 100 articles in a variety of professional journals. The third edition of Dr. Manning’s textbook, Clinical Decision Making in Fluency Disorders, was published in 2010.

                    SiegelBackBookpicGerald “Jerry” Siegel spent his first 21 years in Brooklyn, NY and graduated from Brooklyn college with his BA in 1954. Just three years later Siegel completed his PhD at the famed University of Iowa. Siegel spent forty years in academics and more than 30 years at the University of Minnesota’s speech pathology department. In 2002 Siegel was awarded the Honors of the American Speech-Language-Hearing Association. Siegel was interested in much including stuttering and language development and stated in his memoir that he preferred being a researcher over being a therapist. In addition, Siegel played guitar and sang, was a prolific writer, and loved handball. Siegel shares in his memoir that when he began his studies in 1949, “there were fewer than 1,500 members in ASHA.” Robert West, the first president of ASHA, was one of Siegel’s professors. Siegel studied with Wendell Johnson, Dean Williams and Oliver Bloodstein, pioneers in stuttering research, and developed a friendship with perhaps the most famous pioneer in stuttering, Charles Van Riper. Read more about Gerald Siegel here at the Stuttering Homepage.