A Mother’s Perspective on Stuttering Treatment: When Lidcombe Does Not Work and Dismay Regarding Speech Pathology Australia’s Proposal (Ep. 511)

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Alex, Sophia and Maddy

Charlotte Jolley in Perth, Australia joins Peter Reitzes to discuss being the mother of triplets who all received Lidcombe Stuttering Treatment. Sophia and Maddy recovered while Alex, now 8 years old, continues to stutter. Ms. Jolley reports that Alex received Lidcombe on-and-off for 3-4 years and participated in over 100 treatment sessions. Ms. Jolley expresses feeling that some of her previous speech-language pathologists gave up or “threw in the towel” on helping Alex. Ms. Jolley discussed feeling extremely pleased now that Alex is receiving treatment that focuses on acceptance, empowerment, meeting and learning from other children who stutter and easier ways of talking. After just a single session that focussed on acceptance, Alex is described as a “different boy.”

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Charlotte Jolley

Ms. Jolley expressed great concern and dismay regarding Speech Pathology Australia’s proposal to the Australian Government Department of Treasury. Jane Fraser, President of the Stuttering Foundation, described the issue in a recent statement:

“Australia’s professional association for speech pathology has recently submitted a proposal to the Australian government seeking to provide reimbursement for only a single type of stuttering treatment, creating a ‘one-size-fits-all’ policy for treating pre-school children who stutter. We find this proposal unthinkable and strongly oppose any policy action to limit choices to a single method by controlling government reimbursements for healthcare practitioners in any field…”

Related Links:

  • Kathy Viljoen’s letter to Speech Pathology Australia – link
  • Janet Beilby’s letter to Speech Pathology Australia – link
  • Speech Pathology Australia’s proposal/budget submission to the Australian Government for 2015-2016 – link
  • The Stuttering Foundation’s Response/Statement titled Another Blunder from Down Underlink
  • Craig Coleman’s post/petition – A Dangerous Precedent from Australia: What It Means and What Happens Nextlink
  • Speech Pathology Australia’s Response/Statement – link
  • Problem with “One Size Fits All” – link
  • Michael Palin Centre for Stammering Children letter to Speech Pathology Australia – link
  • Craig Coleman’s ASHA blog post, A Controversial Proposal on Stuttering Treatment from Speech Pathology of Australia: What It Means and What Happens Next – link
  • ASHA blog post by Ann Packman, Mark Onslow and Deborah Theodoros – link
  • International Fluency Association Press Release – link
  • Lidcombe the only effective treatment in Australia? – link
  • Submission to the Community Affairs References Committee of the Senate – “An inquiry into the prevalence of different types of speech, language and communication disorders and speech pathology services in Australia” – link
  • A very important question to Onslow and Packman – link
  • Deborah Theodoros has been misinformed about the efficacy of Lidcombe – link
  • The Australian Budget Lidcombe Proposal Debate: A Primer in Memes – link
  • Chickens are Coming Home – link
  • StutterTalk Episode 502 – link
  • StutterTalk Episode 508 – link
  • StutterTalk Episode 509 – link

    Marriage and Stuttering (Ep. 510)

    Kristel Kubart, MA CCC-SLP

    Kristel Kubart, MA CCC-SLP

    Kristel Kubart joins Peter Reitzes to discuss marriage and stuttering, learning from people who stutter, cerebral palsy and stuttering, advice to speech-language pathologists and much more.

    Kristel Kubart, MA CCC-SLP is a person who stutters and a speech-language pathologist at the American Institute for Stuttering in Manhattan and in the New York City public schools. Kristel is very active with self-help organizations for people who stutter.

      Speech Pathology Australia Encouraged to Clarify Lidcombe-Only Proposal (Ep. 509)

      stuttering, StutterTalk

      Peter Dhu

      Peter Dhu joins Peter Reitzes to discuss a recent proposal by Speech Pathology Australia (SPA) which has many professionals, people who stutter and consumer advocates concerned. In an ASHA blog post, Craig Coleman explains this serious issue:

      “Recently, Speech Pathology Australia (the national speech-language pathology association of Australia) submitted a proposal to the Australian Government Department of Treasury that would require Medicare rebates be made available for children who stutter, but only if they are treated using the Lidcombe Program.”

      Peter Dhu is a person who stutters and is passionate about helping people find their voice so that they can contribute to society in the way they wish to. Mr. Dhu was a Consumer Representative on Speech Pathology Australia’s Professional Standards and Ethics Board, has previously been president of the Australian Speak Easy Association (ASEA) for six years and is a life member of the ASEA. Mr. Dhu is currently president of the Western Australian Speak Easy Association.

      StutterTalk covered this issue at length on Episodes 502 and 508. For a brief and creative background on this issue, check out Katie Gore’s amazing summary The Australian Budget Lidcombe Proposal Debate: A Primer in Memes. Today, Peter Dhu discusses these issues from his self help and consumer advocacy viewpoint.

      Related Links:

      • Kathy Viljoen’s letter to Speech Pathology Australia – link
      • Janet Beilby’s letter to Speech Pathology Australia – link
      • Speech Pathology Australia’s proposal/budget submission to the Australian Government for 2015-2016 – link
      • The Stuttering Foundation’s Response/Statement titled Another Blunder from Down Underlink
      • Craig Coleman’s post/petition – A Dangerous Precedent from Australia: What It Means and What Happens Nextlink
      • Speech Pathology Australia’s Response/Statement – link
      • Problem with “One Size Fits All” – link
      • Michael Palin Centre for Stammering Children letter to Speech Pathology Australia – link
      • Craig Coleman’s ASHA blog post, A Controversial Proposal on Stuttering Treatment from Speech Pathology of Australia: What It Means and What Happens Next – link
      • ASHA blog post by Ann Packman, Mark Onslow and Deborah Theodoros – link
      • International Fluency Association Press Release – link
      • Lidcombe the only effective treatment in Australia? – link
      • Submission to the Community Affairs References Committee of the Senate – “An inquiry into the prevalence of different types of speech, language and communication disorders and speech pathology services in Australia” – link
      • A very important question to Onslow and Packman – link
      • Deborah Theodoros has been misinformed about the efficacy of Lidcombe – link
      • The Australian Budget Lidcombe Proposal Debate: A Primer in Memes – link
      • Chickens are Coming Home – link
      • StutterTalk Episode 502 – link
      • StutterTalk Episode 508 – link

        Speech Pathology Australia Members Share Concerns about Association’s Stuttering Proposal (Ep. 508)

        stuttering, StutterTalk

        Janet Beilby, Ph.D

        Janet Beilby and Kathy Viljoen join Peter Reitzes to discuss a recent proposal by Speech Pathology Australia (SPA) which has many professionals and people who stutter concerned. In an ASHA blog post, Craig Coleman explains this serious issue:

        “Recently, Speech Pathology Australia (the national speech-language pathology association of Australia) submitted a proposal to the Australian Government Department of Treasury that would require Medicare rebates be made available for children who stutter, but only if they are treated using the Lidcombe Program.”

        stuttering, StutterTalk

        Kathy Viljoen

        StutterTalk covered this issue at length on Episode 502. For a brief and creative background on this issue, check out Katie Gore’s amazing summary The Australian Budget Lidcombe Proposal Debate: A Primer in Memes. Today, Dr. Beilby and Ms. Viljoen discuss much, including their experiences with a number of preschool stuttering treatments which have benefited children and families. They also share that Lidcombe treatment does not “work” for all preschoolers who stutter and that the current Speech Pathology Australia proposal may have the effect of discouraging other treatments which may be beneficial and appropriate. Mr. Reitzes asks Dr. Beilby and Ms. Viljoen about a submission made to Australia’s Community Affairs References Committee of the Senate, on University of Sydney letterhead, which concludes in part, that the Australian government should consider the informed choice of parents regarding speech-language pathology services. Ms. Viljoin shared, “I would like to see the SPA proposal be amended to extend coverage to children presenting with the disorder of stuttering rather to a specific treatment per se.” When asked how she might respond to a person who states, “It is only ethical to use Lidcombe treatment with preschoolers who stutter,” Ms. Viljoen responded, “I would ask them if they have had a child who stutters, if they think it is ethical for a program to offer the client to fit the program as opposed to the treatment approach to fit the client.”

        Janet Beilby, Ph.D., is Senior Lecturer and Clinical Educator at Curtin University in Western Australia and has been a lecturer, researcher and clinician in the field of stuttering for over 30 years. Dr. Beilby has treated thousands of clients, trained hundreds of students and been awarded over half a million dollars in research funds investigating varying aspects of stuttering disorders.

        Kathy Viljoen is the mother of children who stuttered and a Clinical Educator at Curtin University in Western Australia specializing in the management of stuttering. Ms. Viljoen supervises both undergraduate and Masters students at Curtin University in their stuttering placements. The Curtin Stuttering Treatment Clinic is the largest treatment facility for individuals who stutter in Western Australia.

        Related Links:

        • Kathy Viljoen’s letter to Speech Pathology Australia – link
        • Janet Beilby’s letter to Speech Pathology Australia – link
        • Speech Pathology Australia’s proposal/budget submission to the Australian Government for 2015-2016 – link
        • The Stuttering Foundation’s Response/Statement titled Another Blunder from Down Underlink
        • Craig Coleman’s post/petition – A Dangerous Precedent from Australia: What It Means and What Happens Nextlink
        • Speech Pathology Australia’s Response/Statement – link
        • Problem with “One Size Fits All” – link
        • Craig Coleman’s ASHA blog post, A Controversial Proposal on Stuttering Treatment from Speech Pathology of Australia: What It Means and What Happens Next – link
        • ASHA blog post by Ann Packman, Mark Onslow and Deborah Theodoros – link
        • International Fluency Association Press Release – link
        • Lidcombe the only effective treatment in Australia? – link
        • Submission to the Community Affairs References Committee of the Senate – “An inquiry into the prevalence of different types of speech, language and communication disorders and speech pathology services in Australia” – link
        • A very important question to Onslow and Packman – link
        • Deborah Theodoros has been misinformed about the efficacy of Lidcombe – link
        • The Australian Budget Lidcombe Proposal Debate: A Primer in Memes – link
        • Chickens are Coming Home – link
        • StutterTalk Episode 502 – link

          Use Your Tools and Other Ineffective Nagging (Ep. 507)

          stuttering, StutterTalk

          Vivian Sisskin, M.S., CCC-SLP

          Vivian Sisskin joins Peter Reitzes to discuss Use Your Tools and Other Ineffective Nagging. Ms. Sisskin is taking up residency this week at StutterTalk for five consecutive days of episodes filled with stuttering goodness and wisdom.

          Vivian Sisskin, M.S., CCC-SLP, is a Clinical Professor in the department of Hearing and Speech Sciences at the University of Maryland and a Board Certified Specialist in Fluency Disorders. Ms. Sisskin runs the Sisskin Stuttering Center in Virginia and is well known for her work in avoidance reduction therapy.

            Praise the Showing Up (Ep. 506)

            stuttering, StutterTalk

            Vivian Sisskin, M.S., CCC-SLP

            Vivian Sisskin joins Peter Reitzes to discuss Praise the Showing Up. Ms. Sisskin is taking up residency this week at StutterTalk for five consecutive days of episodes filled with stuttering goodness and wisdom.

            Vivian Sisskin, M.S., CCC-SLP, is a Clinical Professor in the department of Hearing and Speech Sciences at the University of Maryland and a Board Certified Specialist in Fluency Disorders. Ms. Sisskin runs the Sisskin Stuttering Center in Virginia and is well known for her work in avoidance reduction therapy.

              Fixing the Roof Before Painting the Spot (Ep. 505)

              stuttering, StutterTalk

              Vivian Sisskin, M.S., CCC-SLP

              Vivian Sisskin joins Peter Reitzes to discuss Fixing the Roof Before Painting the Spot. Ms. Sisskin is taking up residency this week at StutterTalk for five consecutive days of episodes filled with stuttering goodness and wisdom.

              Vivian Sisskin, M.S., CCC-SLP, is a Clinical Professor in the department of Hearing and Speech Sciences at the University of Maryland and a Board Certified Specialist in Fluency Disorders. Ms. Sisskin runs the Sisskin Stuttering Center in Virginia and is well known for her work in avoidance reduction therapy.

                Management vs Choice vs Control (Ep. 504)

                stuttering, StutterTalk

                Vivian Sisskin, M.S., CCC-SLP

                Vivian Sisskin joins Peter Reitzes to discuss Management vs Choice vs Control. Ms. Sisskin is taking up residency this week at StutterTalk for five consecutive days of episodes filled with stuttering goodness and wisdom.

                Vivian Sisskin, M.S., CCC-SLP, is a Clinical Professor in the department of Hearing and Speech Sciences at the University of Maryland and a Board Certified Specialist in Fluency Disorders. Ms. Sisskin runs the Sisskin Stuttering Center in Virginia and is well known for her work in avoidance reduction therapy.

                  Joy of Communication vs Fluency (Ep. 503)

                  stuttering, StutterTalk

                  Vivian Sisskin, M.S., CCC-SLP

                  Vivian Sisskin joins Peter Reitzes to discuss the Joy of Communication vs. Fluency. Ms. Sisskin is taking up residency this week at StutterTalk for five consecutive days of episodes filled with stuttering goodness and wisdom.

                  Vivian Sisskin, M.S., CCC-SLP, is a Clinical Professor in the department of Hearing and Speech Sciences at the University of Maryland and a Board Certified Specialist in Fluency Disorders. Ms. Sisskin runs the Sisskin Stuttering Center in Virginia and is well known for her work in avoidance reduction therapy.

                    Many in the Stuttering and SLP Communities Speak Out Against Australian Funding Proposal for “One Size Fits All” Treatment (Ep. 502)

                    Jane Fraser, Elaine KelmanCraig Coleman, and Bob Quesal join Peter Reitzes to discuss a recent proposal by Speech Pathology Australia (SPA) which has many professionals and people who stutter concerned. In an ASHA blog post, Craig Coleman explains this serious issue:

                    “Recently, Speech Pathology Australia (the national speech-language pathology association of Australia) submitted a proposal to the Australian Government Department of Treasury that would require Medicare rebates be made available for children who stutter, but only if they are treated using the Lidcombe Program.”

                    Much is said on today’s episode. Jane Fraser begins by sharing her experience at the Stuttering Foundation hearing from families who do not always find success using Lidcombe Treatment. Jane stresses that a major concern about the SPA proposal is that “one size does not fit all” in stuttering treatment. Ms. Fraser is asked about the Stuttering Foundation’s statement on this issue and a recent Stuttering Foundation blog post. Next, Elaine Kelman is asked about the International Fluency Association’s press release which explains why they feel the Australian Proposal is not fully consistent with evidence based practice. Craig Coleman and Bob Quesal then join the conversation and discuss how there are better ways to advocate for people who stutter then by choosing only one treatment approach to reimburse. Mr. Coleman and Dr. Quesal share their concerns about the possible negative ramifications of the SPA proposal and much, much more.

                    StutterTalk invited Gail Mulcair, Executive Director of Speech Pathology Australia or another SPA representative on air to discuss these issues. SPA did not accept the invitation to participate.

                    Jane Fraser is president of The Stuttering Foundation, has run the Foundation for more than 30 years and is co-author of If Your Child Stutters: A Guide for Parents now in its 8th edition.

                    Elaine Kelman, MSc, Cert CT, Cert MRCSLT is Clinical Manager at The Michael Palin Centre for Stammering Children in London, President of the International Fluency Association, a Certified member of the Royal College of Speech and Language Therapists, an International affiliate of ASHA, and a Member of the Health and Care Professions Council. Ms. Kelman, with Alison Nicholas, authored the textbook Practical Intervention for Early Childhood Stammering: Palin PCI Approach.

                    Craig Coleman, MA, CCC-SLP, BCS-F is an assistant professor at Marshall University and a Board-Certified Specialist in fluency Disorders. Mr. Coleman is currently serving as coordinator of ASHA SIG 4 (Fluency) and as a member of the ASHA ad-hoc committee to revise the scope of practice in speech-language pathology. Craig is an adjunct instructor at Indiana University of Pennsylvania and Co-Director of the Stuttering U. summer program for children who stutter, their families, and SLPs.

                    Robert Quesal, Ph.D., CCC-SLP is a person who stutters, a professor emeritus of Communication Sciences and Disorders at Western Illinois University, a fellow of the American Speech-Language Hearing Association (ASHA) and a retired board certified specialist in fluency disorders.

                    Related Links:

                    • Speech Pathology Australia’s proposal/budget submission to the Australian Government for 2015-2016 – link
                    • The Stuttering Foundation’s Response/Statement titled Another Blunder from Down Underlink
                    • Craig Coleman’s post/petition – A Dangerous Precedent from Australia: What It Means and What Happens Nextlink
                    • Speech Pathology Australia’s Response/Statement – link
                    • Craig Coleman’s ASHA blog post, A Controversial Proposal on Stuttering Treatment from Speech Pathology of Australia: What It Means and What Happens Next – link
                    • ASHA blog post by Ann Packman, Mark Onslow and Deborah Theodoros – link
                    • International Fluency Association Press Release – link
                    • Tom’s Weidig’s post at the Stuttering Brain blog, Lidcombe the only effective treatment in Australia? – link