stuttering

The Pressure to Be Like Other People: The “I have to Be Fluent” Feeling (Ep. 591)

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David, Caryn and Nick

Nick and David, both 17 years old, join Caryn Herring at the 2016 annual convention of FRIENDS: The National Association of Young People Who Stutter. They discuss the pressure to be like other people and how FRIENDS supports people who stutter and their families in facing such challenges.

Other topics include occupations for people who stutter, the role of siblings and parents in stuttering support and working on doing a better job of not hiding stuttering.

The FRIENDS conference takes place July 28-30 in Columbus. Ohio.

Caryn Herring is a person who stutters and a speech-language pathologist, currently pursuing her PhD at The University of Pittsburgh. Caryn is also an adjunct clinical instructor at Duquesne University, supervising graduate students and teaching the Stuttering Course. She is an active member of numerous stuttering organizations.

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    The Best Three Days of My Life at FRIENDS (Ep. 590)

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    Juliette and Josette Tugander with Caryn Hetting

    Juliette and Josette Tugander with Caryn Herring

    Josette Tugander, a young woman who stutters, and her mother Juliette Tugander join Caryn Herring at the 2016 annual convention of FRIENDS: The National Association of Young People Who Stutter. They discuss taking down stuttering walls and being aware of the walls we build.

    Other topics include the power of stuttering support, how people who stutter inspire each other at FRIENDS to be brave with stuttering and the important stuttering moments which happen outside of the workshops at FRIENDS. Josette and Caryn share how helpful it has been seeing peers and role models who stutter face stuttering challenges.

    Josette shares the experience of attending a FRIENDS convention when she was in high school and being inspired by a college student who discussed the importance of telling your roommate about stuttering. Now in college herself, Josette shares how open she is about her own stuttering in college and that her friends and roommates are even in the room sometimes during her Skype speech therapy sessions.

    The FRIENDS conference takes place July 28-30 in Columbus. Ohio.

    Caryn Herring is a person who stutters and a speech-language pathologist, currently pursuing her PhD at The University of Pittsburgh. Caryn is also an adjunct clinical instructor at Duquesne University, supervising graduate students and teaching the Stuttering Course. She is an active member of numerous stuttering organizations.

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      The Struggle to Be Okay with Stuttering (Ep. 589)

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      Reuben Schuff and Eddie Samp

      Eddie Samp joins Reuben Schuff at the 2016 annual convention of FRIENDS: The National Association of Young People Who Stutter. Mr. Samp discusses his lifelong struggle with “being okay with the way I speak” and how FRIENDS has become a second family.

      The FRIENDS conference takes place July 28-30 in Columbus. Ohio.

      Eddie Samp is a 26 year old person who stutters, lives in Boston, and works in investment management. Eddie has been involved with FRIENDS since he was 7 years old. Mr. Samp returned this year to the FRIENDS convention to reconnect with friends and to give back support to the stuttering community.

      Reuben Schuff is an author and roving host for StutterTalk. By profession and passion he is an aerospace engineer, and also, a traveler, a juggler, a Toastmaster, and a person who stutters. He is a workshop presenter for the National Stuttering Association (NSA) annual conference and is the co-founder of the Raleigh Teens Who Stutter (TWST) chapter of the NSA. Reuben also facilitates and presents with FRIENDS (the National Organization for Young People who Stutter). Reuben is author of the chapter Fluency: My Untrustworthy Friend in the StutterTalk book: Stuttering: Inspiring Stories and Professional Wisdom.

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        What We Gain By Stuttering Freely at the 2016 FRIENDS Convention (Ep. 588)

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        Chris Constantino and Mary McLoughlin at FRIENDS

        Mary McLoughlin joins Chris Constantino at the 2016 annual convention of FRIENDS: The National Association of Young People Who Stutter to discuss the power of vulnerability, what we gain by stuttering freely and how stuttering leads to intimate and meaningful relationships with other people. Ms. McLoughlin explains that she keeps returning to FRIENDS conventions because “I couldn’t be in better company.”

        Other topics include the value of stuttered communication, stuttering freely and openly, meeting people who stutter with confidence and positivity, taking ownership of stuttering, how stuttering voices create spaces for intimacy and vulnerability, using voluntary stuttering to ground communication and much more.

        The FRIENDS conference takes place July 28-30 in Columbus, Ohio.

        Mary McLoughlin is from Long Island, New York and will be a student at the University of Dayton starting this fall. She plans on majoring in English. This is her third FRIENDS conference.

        Christopher Constantino is a person who stutters, a StutterTalk host and a PhD student in Communication Sciences and Disorders at the University of Memphis. Chris is doing his clinical fellowship in the Shelby County Schools in Memphis and is conducting a research study to understand and contextualize the experiences of passing as fluent for people who covertly stutter.

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          Taking the Role of a Person Who Stutters (Ep. 586)

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          Marcus Peters

          Marcus Peters joins Peter Reitzes to discuss the importance of taking the role of a person who stutters. Mr. Peter’s attributes this perspective and phrase to Vivian Sisskin.

          Mr. Peters is asked about attending his first National Stuttering Association Conference and a workshop which challenged him to consider the terms “disordered” vs “different.” Other language discussed today includes acceptance, empowered, stuttering pride, fixed and broken, uniqueness, pathology and value. Mr. Peters advocates using language to challenge society to think differently about stuttering. When asked about the process of change, Mr. Peter’s responded, “It’s pretty remarkable how we can change and how we can grow when we start to hope and when we start to look at things from a different perspective.”

          Marcus is asked about stuttering being a blessing, how being Nigerian-American and a person of color impacts his stuttering experience, his current goal of advertising stuttering and much more.

          Marcus Peters is a person who stutters in Dallas, Texas, an Information Systems Analyst, and a member of the Dallas Chapter of the National Stuttering Association. Mr. Peters holds a degree in Economics from the University of Maryland and a Masters in Business Administration from the University of Texas at Dallas.

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            Not About Me Without Me (Ep. 583)

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            stuttering, StutterTalkBob Quesal and Joe Klein join Peter Reitzes to respond to Joshua St. Pierre’s criticism of the National Stuttering Association (NSA). Pierre’s criticism stems, in part, from a StutterTalk interview with the NSA’s Chairman, Gerald Maguire, titled The Future of the National Stuttering Association. 

            Bob, Joe and Peter discuss a number of topics including stuttering, acceptance, treatment, the search for a cure, eugenics, the role of the National Stuttering Association, Did I Stutter?, responses from people who stutter to Josh’s post and much more. In response to Josh’s post and to the work of Did I Stutter?, it is pointed out that the very folks preaching some version of “not about me without me” are perhaps in need of the very same reminder.

            Robert Quesal, Ph.D., CCC-SLP is a professor emeritus of Communication Sciences and Disorders at Western Illinois University, a person who stutters, a fellow of the American Speech-Language-Hearing Association and a retired Board Certified Specialist in Fluency and Fluency Disorders.

            Joe Klein, Ph.D, CCC-SLP is a person who stutters and an assistant professor in Appalachian State University’s Department of Communication Sciences and Disorders.

            Links:

            • Barry Yeoman’s keynote address from the Past, Present and Future of Stuttering Conference (video/text)
            • Dean William’s A Point of View about Stuttering (abstract/partial view)
            • A Tribute to Dean Williams by Robert Quesal
            • The Construction of the Disabled Speaker: Locating Stuttering in Disability Studies by Joshua St. Pierrre (full text)
            • Stuttering, Activism, Disability, Ableism and Informed Consent (StutterTalk Ep. 483)
            • Honest Speech and Stuttering Hospitably (StutterTalk Ep. 488)
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              The Physical Exhaustion of Stuttering (Ep. 582)

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              Sarah Berkowitz

              Sarah Berkowitz joins Peter Reitzes to discuss the physical exhaustion of stuttering.

              This conversation stems from a post Ms. Berkowitz made at Stuttering Arena in which she said, “Does anyone else ever feel physically exhausted from their stutter? Sometimes I feel like I just ran a marathon.”

              Other topics include how and why telling your teacher about stuttering may be helpful, an amazing idea Ms. Berkowitz has to raise stuttering awareness by offering people who stutter the option to have stuttering listed on driver’s licenses and identification cards, her work with the The Stuttering Association for the Young (SAY), how she uses “phrasing” to help manage stuttering and so much more.

              When discussing the physical exhaustion of stuttering, Ms. Berkowitz is asked about the following statement from Did I Stutter?

              “Stuttering is only a problem—in fact is only abnormal—because our culture places so much value on efficiency and self-mastery. Stuttering breaks communication only because ableist notions have already decided how fast and smooth a person must speak to be heard and taken seriously.”

              Ms. Berkowitz responded:

              “I completely disagree with that statement. Stuttering is a problem in itself. We know stuttering is a real diagnosable disorder with a cause and that is not caused by society’s pressure to decide how fast or slow a stutterer should speak. Stuttering itself is separate from what society believes someone should sound like…That makes me feel like people are denying that stuttering is a real problem.”

              Sarah Berkowitz is a 17 year old senior at Adlai E Stevenson High School. Sarah aims for a career working with children with special needs. She is one of the founding Board members of The Stuttering Association For the Young’s Chicago chapter. Recently Sarah performed at SAY’s 14th annual benefit gala and is one of the authors of SAY: Storytellers Vol. 1.

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                Stuttering and Insurance Reimbursement (Ep. 579)

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                Katie Gore MA, CCC-SLP

                Katie Gore joins Peter Reitzes to discuss stuttering and insurance reimbursement. Ms. Gore is asked about general health care terms such as co-pays, “case studies” and victories from her private practice in advocating for clients with their insurance companies, peer-to-peer meetings with insurance companies, how people who stutter and parents may consider advocating for themselves, how speech-language pathologists may consider advocating for clients, pre-authorization with insurance companies, the importance of contacting insurance companies with questions before beginning treatment, using pre-tax income to pay for treatment (such as flexible spending accounts), gap exceptions, diagnostic criteria and codes and so much more.

                StutterTalk reports with great pride that Katie Gore has advocated so hard for clients that she has actually, on occasion, been informed by insurance companies that she has “maxed out” in the number of letters she is aloud to submit on a client’s behalf. Even so, when this occurs, Katie continues to advocate for her clients by assisting them in writing letters to their insurance companies.

                Special thanks to the great Craig Coleman for recommending Katie Gore for today’s topic.

                Katie Gore, MA, CCC-SLP is a speech-language pathologist, Director of Speech IRL and co-leader of the City of Chicago’s chapter of the National Stuttering Association. Ms. Gore made a splash last summer with her post The Australian Budget Lidcombe Proposal Debate: A Primer in Memes.

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                  The Future of the National Stuttering Association with Dr. Gerald Maguire (Ep. 578)

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                  Dr. Gerald Maguire

                  Dr. Gerald Maguire, the newly elected Chairman of the National Stuttering Association (NSA), joins Peter Reitzes to discuss the future of the NSA and the role and importance of stuttering self help. On the second half of today’s episode, Dr. Maguire is asked a range of questions about the medical treatment of stuttering.

                  Dr. Maguire said that in his role as Chairman of the NSA, it is important to “Remember our legacy and at the same time grow for the future. Our mission is simple and bold as we move ahead. Which is essentially meeting the needs of the stuttering community today while searching for the enhanced treatments of tomorrow.” 

                  Dr. Maguire shared that his vision for the future of the NSA includes enhanced fundraising to support the NSA, providing legal counsel to people who stutter related to discrimination, creating a government relations arm and committee, increasing media outreach and funding for stuttering research with a goal of distributing competitive grants in the millions of dollars of range. Dr. Maguire stated that he wants the NSA to “not only be the leading resource for self help, but for education, advocacy and research.”

                  When asked about finding a balance between “stuttering is okay” and seeking a cure, Dr. Maguire responded, “I like to say that acceptance and searching for treatments do not need to be mutually exclusive. In my other treatments of brain disorders such as major depressive disorder or bipolar disorder, the individual with the disorder accepts the condition but they also accept the nature of the treatment for the condition – things that they have to do to lead a more functional life and a better outcome…”

                  Dr. Gerlald Maguire is the new Chairman of the Board of the National Stuttering Association, Chair of Psychiatry in the University of California’s Riverside School of Medicine and a professor of psychiatry, is the Kirkup Center Chair in Stuttering Treatment and considered by many to be the leading authority on the medical treatment of stuttering.

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                    The Past, Present, and Future of Stuttering (Ep. 574)

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                    Emma Alpern

                    Stavros Ladeas and Emma Alpern join Peter Reitzes to discuss the upcoming Day of Workshops in NYC titled The Past, Present, and Future of Stuttering, Sunday May 15, 2016. 9:30AM-5pm in Manhattan. Event details here. This event is for adults and mature teens who stutter.

                    Alpern and Ladeas announce that professional journalist and StutterTalk contributor Barry Yeoman will be the keynote presenter at this one day workshop and that StutterTalk host Christopher Constantino will also be presenting on a disability rights topic.

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                    Stavros Ladeas

                    In promoting this workshop, The NYC Chapters of the National Stuttering Association explain that they “firmly believe that stuttering is okay.” When asked today on StutterTalk what it means to be okay with stuttering, Ms. Alpern explained, “It means I don’t have to change the way I speak; I don’t have to obsess over my speech…and that is one of the things I think we want to talk about at the conference…look at all the ways it can be okay.” Mr. Ladeas explained that many people may participate in stuttering self help to offset the “impact of society on stuttering” and to “unlearn a lot of what they have learned.” When discussing the topic of a cure, Mr. Ladeas shared, “For me, the cure is allowing myself to stutter openly, and be present, and be more of an effective communicator.”

                    Emma Alpern is an editor and writer living in Brooklyn, New York. She has written about stuttering for The Atlantic, Broadly, and Did I Stutter. Emma has been a part of the stuttering community for about five years, and co-leads the Brooklyn chapter of the National Stuttering Association. She’s also recently been involved with events for FRIENDS and SAY (the Stuttering Association for the Young).

                    Stavros Ladeas is first-generation American from Greek parents, who currently lives in Queens. He works in tech, making mobile apps for an agency in the city. He is co-founder and co-leader of the Manhattan Chapter of the National Stuttering Association. He’s been involved in the stuttering community for about five years now, and is enjoying the expanding stuttering community there.

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