National Stuttering Association

9 Jul 2016

Freedom to Speak and Freedom to Stutter at the 2016 NSA Conference (Ep. 585)

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Jia Bin with host Christopher Constantino

Jia Bin joins Christopher Constantino today at the Joint Conference of the National Stuttering Association (NSA) and the International Stuttering Association (ISA) in Atlanta, Georgia. Ms. Bin shares that in China there is a lot of stigma surrounding disabilities and that many people with disabilities, including people who stutter, feel a need to hide their stuttering in academia and in the workforce. Ms. Bin discusses learning to stutter openly in the United States after feeling trapped with stuttering in China.

Ms. Bin shares, “The more you hide the worse it gets. So for years and years I had to hide every day. Every conversation I had to hide. I had to pretend I could talk like everyone else. That’s a lot of struggle for me. It’s like you are pretending you are somebody else your whole life.” Mr. Constantino discusses with Ms. Bin the consequences of choosing open stuttering.

The joint NSA/ISA conference takes place July 6-10, 2016. This is the NSA’s 33rd annual conference.

Jia Bin is a person who stutters from China living in Michigan. Ms. Bin is a high school Chinese Teacher.

Christopher Constantino is a person who stutters, a StutterTalk host and a PhD student in Communication Sciences and Disorders at the University of Memphis. Chris is doing his clinical fellowship in the Shelby County Schools in Memphis and is conducting a research study to understand and contextualize the experiences of passing as fluent for people who covertly stutter.

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6 Jul 2016

Changing My Story: From the NSA’s 2016 Research Symposium (Ep. 584)

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Anthony DiLollo, PhD

Anthony DiLollo joins Reuben Schuff today at the National Stuttering Association’s 2016 Research Symposium to discuss his presentation Talking Back to Stuttering: A Constructivist Approach to Counseling with Persons Who Stutter. Dr. DiLollo discusses how people who stutter have the ability to tell and live a different story. Dr. DiLollo states, “We underestimate how much control we have over the way we think and feel simply by the stories we tell.”

Today’s StutterTalk episode was recorded at the Joint Conference of the National Stuttering Association (NSA) and the International Stuttering Association (ISA) in Atlanta, Georgia, July 6-10, 2016. This is the NSA’s 33rd annual conference.

Anthony DiLollo, PhD, is an associate professor of speech-language pathology at Wichita State University, specializing in counseling, fluency disorders, interpersonal communication, and qualitative research methods. He has worked as a psychologist and as a speech-language pathologist in clinical and educational settings, as well as 13 years in academia.

Reuben Schuff is an author and roving host for StutterTalk. By profession and passion he is an aerospace engineer, and also, a traveler, a juggler, a Toastmaster, and a person who stutters. He is a workshop presenter for the National Stuttering Association (NSA) annual conference and is the co-founder of the Raleigh Teens Who Stutter (TWST) chapter of the NSA. Reuben also facilitates and presents with FRIENDS (the National Organization for Young People who Stutter). Reuben is author of the chapter Fluency: My Untrustworthy Friend in the StutterTalk book: Stuttering: Inspiring Stories and Professional Wisdom.

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2 May 2016

The Future of the National Stuttering Association with Dr. Gerald Maguire (Ep. 578)

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Dr. Gerald Maguire

Dr. Gerald Maguire, the newly elected Chairman of the National Stuttering Association (NSA), joins Peter Reitzes to discuss the future of the NSA and the role and importance of stuttering self help. On the second half of today’s episode, Dr. Maguire is asked a range of questions about the medical treatment of stuttering.

Dr. Maguire said that in his role as Chairman of the NSA, it is important to “Remember our legacy and at the same time grow for the future. Our mission is simple and bold as we move ahead. Which is essentially meeting the needs of the stuttering community today while searching for the enhanced treatments of tomorrow.” 

Dr. Maguire shared that his vision for the future of the NSA includes enhanced fundraising to support the NSA, providing legal counsel to people who stutter related to discrimination, creating a government relations arm and committee, increasing media outreach and funding for stuttering research with a goal of distributing competitive grants in the millions of dollars of range. Dr. Maguire stated that he wants the NSA to “not only be the leading resource for self help, but for education, advocacy and research.”

When asked about finding a balance between “stuttering is okay” and seeking a cure, Dr. Maguire responded, “I like to say that acceptance and searching for treatments do not need to be mutually exclusive. In my other treatments of brain disorders such as major depressive disorder or bipolar disorder, the individual with the disorder accepts the condition but they also accept the nature of the treatment for the condition – things that they have to do to lead a more functional life and a better outcome…”

Dr. Gerlald Maguire is the new Chairman of the Board of the National Stuttering Association, Chair of Psychiatry in the University of California’s Riverside School of Medicine and a professor of psychiatry, is the Kirkup Center Chair in Stuttering Treatment and considered by many to be the leading authority on the medical treatment of stuttering.

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3 Apr 2016

The Past, Present, and Future of Stuttering (Ep. 574)

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Emma Alpern

Stavros Ladeas and Emma Alpern join Peter Reitzes to discuss the upcoming Day of Workshops in NYC titled The Past, Present, and Future of Stuttering, Sunday May 15, 2016. 9:30AM-5pm in Manhattan. Event details here. This event is for adults and mature teens who stutter.

Alpern and Ladeas announce that professional journalist and StutterTalk contributor Barry Yeoman will be the keynote presenter at this one day workshop and that StutterTalk host Christopher Constantino will also be presenting on a disability rights topic.

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Stavros Ladeas

In promoting this workshop, The NYC Chapters of the National Stuttering Association explain that they “firmly believe that stuttering is okay.” When asked today on StutterTalk what it means to be okay with stuttering, Ms. Alpern explained, “It means I don’t have to change the way I speak; I don’t have to obsess over my speech…and that is one of the things I think we want to talk about at the conference…look at all the ways it can be okay.” Mr. Ladeas explained that many people may participate in stuttering self help to offset the “impact of society on stuttering” and to “unlearn a lot of what they have learned.” When discussing the topic of a cure, Mr. Ladeas shared, “For me, the cure is allowing myself to stutter openly, and be present, and be more of an effective communicator.”

Emma Alpern is an editor and writer living in Brooklyn, New York. She has written about stuttering for The Atlantic, Broadly, and Did I Stutter. Emma has been a part of the stuttering community for about five years, and co-leads the Brooklyn chapter of the National Stuttering Association. She’s also recently been involved with events for FRIENDS and SAY (the Stuttering Association for the Young).

Stavros Ladeas is first-generation American from Greek parents, who currently lives in Queens. He works in tech, making mobile apps for an agency in the city. He is co-founder and co-leader of the Manhattan Chapter of the National Stuttering Association. He’s been involved in the stuttering community for about five years now, and is enjoying the expanding stuttering community there.

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3 Jul 2015

Stuttering Research and a Fragile Speech-Motor System (Ep. 525)

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Evan Usler

Evan Usler joins Reuben Schuff at the 32nd annual conference of the National Stuttering Association in Baltimore, Maryland. They discuss research coming from the Purdue Stuttering Project and much more.

Evan Usler is a Ph.D. student in the Department of Speech, Language, & Hearing Sciences at Purdue University. He has degrees in Public Administration and Information Studies from the University of Rhode Island and is interested in the neural subsystems of speech and language, how these systems develop, and how they interact with cognitive and emotional processes. He is a research assistant with the Purdue Stuttering Project, which is co-directed by Drs. Anne Smith and Christine Weber.

Reuben Schuff is a guest, author and roving host for StutterTalk. By profession and passion he is an aerospace engineer, and also, a traveler, a juggler, a Toastmaster, and a person who stutters. He is a workshop presenter for the National Stuttering Association (NSA) annual conference and is the co-founder of the Raleigh Teens Who Stutter (TWST) chapter of the NSA. Reuben also facilitates and presents with FRIENDS (the National Organization for Young People who Stutter). Reuben is author of Fluency: My Untrustworthy Friend in the StutterTalk book: Stuttering: Inspiring Stories and Professional Wisdom. 

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2 Jul 2015

What Is Stuttering? – From The NSA’s 2015 Research Symposium (Ep. 524)

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stutteringSamantha Wasilus and Alex Spirer join Reuben Schuff at the 32nd annual conference of the National Stuttering Association (NSA) in Baltimore, Maryland. They discuss the NSA’s 2015 Research Symposium and begin by talking about Anne Smith’s presentation from Purdue University on her “big picture view” on the causes of stuttering and her research results in this area. They then discuss Bruce Wampold’s presentation and work on characteristics of effective therapists and successful outcomes of stuttering treatment.

Samantha Wasilu is a speech language pathologist at a private school in Washington, D.C. and works at a private practice in Virginia. She earned her masters in Speech Language Pathology at the University of Maryland-College Park as well as her bachelors in Psychology and Hearing and Speech Science. Samantha is a licensed therapist in Virginia and Washington, DC, ASHA certified, and a member of ASHA’s Special Interest Group 4, Fluency and Fluency Disorders. Samantha’s experience includes working with people who stutter of all age groups, both individually and within a group setting. Her research projects include investigation and treatment of atypical disfluencies.

Alex Spirer is a person who stutters who is attending his fifth NSA conference. He graduated from the University of Maryland in 2011 with a degree in business. Alex now works in Washington, D.C. as a consultant for a federal agency.

Reuben Schuff is a guest, author and roving host for StutterTalk. By profession and passion he is an aerospace engineer, and also, a traveler, a juggler, a Toastmaster, and a person who stutters. He is a workshop presenter for the National Stuttering Association (NSA) annual conference and is the co-founder of the Raleigh Teens Who Stutter (TWST) chapter of the NSA. Reuben also facilitates and presents with FRIENDS (the National Organization for Young People who Stutter). Reuben is author of Fluency: My Untrustworthy Friend in the StutterTalk book: Stuttering: Inspiring Stories and Professional Wisdom. 

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