stuttering

21 Jul 2016

Taking the Role of a Person Who Stutters (Ep. 586)

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Marcus Peters

Marcus Peters joins Peter Reitzes to discuss the importance of taking the role of a person who stutters. Mr. Peter’s attributes this perspective and phrase to Vivian Sisskin.

Mr. Peters is asked about attending his first National Stuttering Association Conference and a workshop which challenged him to consider the terms “disordered” vs “different.” Other language discussed today includes acceptance, empowered, stuttering pride, fixed and broken, uniqueness, pathology and value. Mr. Peters advocates using language to challenge society to think differently about stuttering. When asked about the process of change, Mr. Peter’s responded, “It’s pretty remarkable how we can change and how we can grow when we start to hope and when we start to look at things from a different perspective.”

Marcus is asked about stuttering being a blessing, how being Nigerian-American and a person of color impacts his stuttering experience, his current goal of advertising stuttering and much more.

Marcus Peters is a person who stutters in Dallas, Texas, an Information Systems Analyst, and a member of the Dallas Chapter of the National Stuttering Association. Mr. Peters holds a degree in Economics from the University of Maryland and a Masters in Business Administration from the University of Texas at Dallas.

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20 Jun 2016

Not About Me Without Me (Ep. 583)

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stuttering, StutterTalkBob Quesal and Joe Klein join Peter Reitzes to respond to Joshua St. Pierre’s criticism of the National Stuttering Association (NSA). Pierre’s criticism stems, in part, from a StutterTalk interview with the NSA’s Chairman, Gerald Maguire, titled The Future of the National Stuttering Association. 

Bob, Joe and Peter discuss a number of topics including stuttering, acceptance, treatment, the search for a cure, eugenics, the role of the National Stuttering Association, Did I Stutter?, responses from people who stutter to Josh’s post and much more. In response to Josh’s post and to the work of Did I Stutter?, it is pointed out that the very folks preaching some version of “not about me without me” are perhaps in need of the very same reminder.

Robert Quesal, Ph.D., CCC-SLP is a professor emeritus of Communication Sciences and Disorders at Western Illinois University, a person who stutters, a fellow of the American Speech-Language-Hearing Association and a retired Board Certified Specialist in Fluency and Fluency Disorders.

Joe Klein, Ph.D, CCC-SLP is a person who stutters and an assistant professor in Appalachian State University’s Department of Communication Sciences and Disorders.

Links:

  • Barry Yeoman’s keynote address from the Past, Present and Future of Stuttering Conference (video/text)
  • Dean William’s A Point of View about Stuttering (abstract/partial view)
  • A Tribute to Dean Williams by Robert Quesal
  • The Construction of the Disabled Speaker: Locating Stuttering in Disability Studies by Joshua St. Pierrre (full text)
  • Stuttering, Activism, Disability, Ableism and Informed Consent (StutterTalk Ep. 483)
  • Honest Speech and Stuttering Hospitably (StutterTalk Ep. 488)
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11 Jun 2016

The Physical Exhaustion of Stuttering (Ep. 582)

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Sarah Berkowitz

Sarah Berkowitz joins Peter Reitzes to discuss the physical exhaustion of stuttering.

This conversation stems from a post Ms. Berkowitz made at Stuttering Arena in which she said, “Does anyone else ever feel physically exhausted from their stutter? Sometimes I feel like I just ran a marathon.”

Other topics include how and why telling your teacher about stuttering may be helpful, an amazing idea Ms. Berkowitz has to raise stuttering awareness by offering people who stutter the option to have stuttering listed on driver’s licenses and identification cards, her work with the The Stuttering Association for the Young (SAY), how she uses “phrasing” to help manage stuttering and so much more.

When discussing the physical exhaustion of stuttering, Ms. Berkowitz is asked about the following statement from Did I Stutter?

“Stuttering is only a problem—in fact is only abnormal—because our culture places so much value on efficiency and self-mastery. Stuttering breaks communication only because ableist notions have already decided how fast and smooth a person must speak to be heard and taken seriously.”

Ms. Berkowitz responded:

“I completely disagree with that statement. Stuttering is a problem in itself. We know stuttering is a real diagnosable disorder with a cause and that is not caused by society’s pressure to decide how fast or slow a stutterer should speak. Stuttering itself is separate from what society believes someone should sound like…That makes me feel like people are denying that stuttering is a real problem.”

Sarah Berkowitz is a 17 year old senior at Adlai E Stevenson High School. Sarah aims for a career working with children with special needs. She is one of the founding Board members of The Stuttering Association For the Young’s Chicago chapter. Recently Sarah performed at SAY’s 14th annual benefit gala and is one of the authors of SAY: Storytellers Vol. 1.

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15 May 2016

Stuttering and Insurance Reimbursement (Ep. 579)

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Katie Gore MA, CCC-SLP

Katie Gore joins Peter Reitzes to discuss stuttering and insurance reimbursement. Ms. Gore is asked about general health care terms such as co-pays, “case studies” and victories from her private practice in advocating for clients with their insurance companies, peer-to-peer meetings with insurance companies, how people who stutter and parents may consider advocating for themselves, how speech-language pathologists may consider advocating for clients, pre-authorization with insurance companies, the importance of contacting insurance companies with questions before beginning treatment, using pre-tax income to pay for treatment (such as flexible spending accounts), gap exceptions, diagnostic criteria and codes and so much more.

StutterTalk reports with great pride that Katie Gore has advocated so hard for clients that she has actually, on occasion, been informed by insurance companies that she has “maxed out” in the number of letters she is aloud to submit on a client’s behalf. Even so, when this occurs, Katie continues to advocate for her clients by assisting them in writing letters to their insurance companies.

Special thanks to the great Craig Coleman for recommending Katie Gore for today’s topic.

Katie Gore, MA, CCC-SLP is a speech-language pathologist, Director of Speech IRL and co-leader of the City of Chicago’s chapter of the National Stuttering Association. Ms. Gore made a splash last summer with her post The Australian Budget Lidcombe Proposal Debate: A Primer in Memes.

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2 May 2016

The Future of the National Stuttering Association with Dr. Gerald Maguire (Ep. 578)

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Dr. Gerald Maguire

Dr. Gerald Maguire, the newly elected Chairman of the National Stuttering Association (NSA), joins Peter Reitzes to discuss the future of the NSA and the role and importance of stuttering self help. On the second half of today’s episode, Dr. Maguire is asked a range of questions about the medical treatment of stuttering.

Dr. Maguire said that in his role as Chairman of the NSA, it is important to “Remember our legacy and at the same time grow for the future. Our mission is simple and bold as we move ahead. Which is essentially meeting the needs of the stuttering community today while searching for the enhanced treatments of tomorrow.” 

Dr. Maguire shared that his vision for the future of the NSA includes enhanced fundraising to support the NSA, providing legal counsel to people who stutter related to discrimination, creating a government relations arm and committee, increasing media outreach and funding for stuttering research with a goal of distributing competitive grants in the millions of dollars of range. Dr. Maguire stated that he wants the NSA to “not only be the leading resource for self help, but for education, advocacy and research.”

When asked about finding a balance between “stuttering is okay” and seeking a cure, Dr. Maguire responded, “I like to say that acceptance and searching for treatments do not need to be mutually exclusive. In my other treatments of brain disorders such as major depressive disorder or bipolar disorder, the individual with the disorder accepts the condition but they also accept the nature of the treatment for the condition – things that they have to do to lead a more functional life and a better outcome…”

Dr. Gerlald Maguire is the new Chairman of the Board of the National Stuttering Association, Chair of Psychiatry in the University of California’s Riverside School of Medicine and a professor of psychiatry, is the Kirkup Center Chair in Stuttering Treatment and considered by many to be the leading authority on the medical treatment of stuttering.

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3 Apr 2016

The Past, Present, and Future of Stuttering (Ep. 574)

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Emma Alpern

Stavros Ladeas and Emma Alpern join Peter Reitzes to discuss the upcoming Day of Workshops in NYC titled The Past, Present, and Future of Stuttering, Sunday May 15, 2016. 9:30AM-5pm in Manhattan. Event details here. This event is for adults and mature teens who stutter.

Alpern and Ladeas announce that professional journalist and StutterTalk contributor Barry Yeoman will be the keynote presenter at this one day workshop and that StutterTalk host Christopher Constantino will also be presenting on a disability rights topic.

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Stavros Ladeas

In promoting this workshop, The NYC Chapters of the National Stuttering Association explain that they “firmly believe that stuttering is okay.” When asked today on StutterTalk what it means to be okay with stuttering, Ms. Alpern explained, “It means I don’t have to change the way I speak; I don’t have to obsess over my speech…and that is one of the things I think we want to talk about at the conference…look at all the ways it can be okay.” Mr. Ladeas explained that many people may participate in stuttering self help to offset the “impact of society on stuttering” and to “unlearn a lot of what they have learned.” When discussing the topic of a cure, Mr. Ladeas shared, “For me, the cure is allowing myself to stutter openly, and be present, and be more of an effective communicator.”

Emma Alpern is an editor and writer living in Brooklyn, New York. She has written about stuttering for The Atlantic, Broadly, and Did I Stutter. Emma has been a part of the stuttering community for about five years, and co-leads the Brooklyn chapter of the National Stuttering Association. She’s also recently been involved with events for FRIENDS and SAY (the Stuttering Association for the Young).

Stavros Ladeas is first-generation American from Greek parents, who currently lives in Queens. He works in tech, making mobile apps for an agency in the city. He is co-founder and co-leader of the Manhattan Chapter of the National Stuttering Association. He’s been involved in the stuttering community for about five years now, and is enjoying the expanding stuttering community there.

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