20 Jan 2016

Taking Fluency Off the Table (Ep. 565)

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stuttering, StutterTalk
Sara MacIntyre M.A., CCC-SLP

Sara MacIntyre joins Peter Reitzes to discuss a holistic approach to stuttering treatment which includes how, when and why to take fluency off the table. Sara answers listener questions and discusses her experience that the more a person tries not to stutter the more likely he or she may be to stutter.

Sara MacIntyre, M.A., CCC-SLP is a person who stutters, a speech-language pathologist at the American Institute for Stuttering (AIS) in New York City and teaches at Long Island University in Brooklyn, New York University and Mercy College. Sara’s excellent chapter, Passing as Fluent, can be found in the StutterTalk book, Stuttering: Inspiring Stories and Professional Wisdom.

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9 Jan 2016

What Causes Stuttering with Dr. Gerald Maguire from UC Riverside School of Medicine and the Kirkup Center (Ep. 564)

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stuttering, StutterTalk
Gerald Maguire, M.D., DFAPA

Today on StutterTalk we ask Dr. Gerald Maguire what causes stuttering? This is the fourth episode in a series on the cause of stuttering. Dr. Maguire discusses the cause of stuttering while also providing listeners with a research update and much more.

Dr. Maguire is Chair of Psychiatry in the University of California’s, Riverside School of Medicine and a professor of psychiatry. Dr. Maguire is the Kirkup Center Chair in Stuttering Treatment and considered by many to be the leading authority on the medical treatment of stuttering. Jerry is well-published in numerous psychiatric journals. His previous appearances on StutterTalk are archived here.

Dr. Maguire may be contacted via email: gerald.maguire@ucr.edu

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1 Jan 2016

What Causes Stuttering with Nina G (Ep. 563)

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stuttering, StutterTalk
Nina G, comedian, speaker, author, advocate

What causes stuttering is a question that professionals and others in the stuttering community are frequently called upon to answer. Today on StutterTalk we ask Nina G how she responds when asked this question. This is the third episode in StutterTalk’s series on what causes stuttering. Nina largely agrees with the first two guests that stuttering “appears to be a problem with neural processing of speech involving genetics.” However, Nina shares her view that we should not be calling stuttering a problem “because a problem indicates that it needs to be changed.”

Nina G is asked to discuss a range of topics including disability rights and stuttering, her term neural diversity, inspirational porn, informed consent, stuttering humor on the Howard Stern show and much more. Nina mentions StutterTalk’s interviews with John Melendez (Stuttering John) and Mel Tillis.

Nina G, is a comedian, speaker, advocate, disability activist, storyteller, counselor and the author of a children’s book, Once Upon An Accommodation: A Book About Learning Disabilities (link). Nina G’s album is Disabled Comedy Only. 

Nina G was kind enough to provide a transcript of this episode.

Related Episodes:

  • What Causes Stuttering with Dr. Dennis Drayna from the NIH (Ep. 560)
  • What Causes Stuttering with Dr. Mark Onslow from ASRC (Ep. 558)
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25 Dec 2015

Did I Stutter? (Ep. 562)

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stuttering, StutterTalk
Caryn, Joel and Roisin

Caryn Herring, Joel Korte and Roisin McManus of the StutterTalk B Team discuss some of the ideas and positions presented on the Did I Stutter website.

While The B Team embrace the overall “wisdom” of the Did I Stutter community, they also push back on the tone and on some of the absolute positions presented on the site. Joel Korte reminds listeners that “stuttering isn’t black and white… [It has] lots of shades of grey.” Caryn Herring shares her concern that some of the positions at Did I Stutter strongly suggest “this is how I should feel” with Joel agreeing and reminding listeners that the stuttering community has a history of people suggesting how we should think and feel about stuttering. Caryn shares that “In some ways I agree with them [the Did I Stutter community] and then at the same time it does feel like we are trying to fight this fight against what everybody else thinks rather than doing something for ourselves. It seems like a lot of thought and work to change how everyone else is rather than just focussing that on us.”

One of the Did I Stutter positions discussed on today’s episode is: “Stuttering is only a problem—in fact is only abnormal—because our culture places so much value on efficiency and self-mastery.” While the B Team accept some aspects of this position, they also challenge it by discussing their experiences and frustrations with feeling unable to get their words out and unable to communicate at times because of stuttering.

Related Episodes

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20 Dec 2015

A Genetics and Stuttering Update with Dr. Dennis Drayna from the NIH (Ep. 561)

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stuttering, StutterTalk
Dennis Drayna, Ph.D., Senior Investigator, National Institutes of Health

Dr. Dennis Drayna joins Peter Reitzes to provide StutterTalk listeners with an end of the year genetics update. Dr. Drayna discusses recent research, answers listener questions and reports that his team at the NIH recently discovered a fourth stuttering gene. Dr. Drayna shares that these four stuttering genes account for between 12-20% of stuttering cases worldwide. The interview ends with a fascinating discussion regarding research in progress which looks at the vocalizations of mice engineered to carry a mutated gene and the speech of people of people who stutter. Dr. Drayna reports that there is a difference in “the timing of vocalizations” and something “not quite right” in the mice with the mutated gene which may be similar to human stuttering.

Dennis Drayna, Ph.D., is Senior Investigator at the National Institute on Deafness and Other Communication Disorders at the National Institutes of Health (NIH). Read more about Dr. Drayna at the NIH website here. Dr. Drayna’s other StutterTalk appearances are archived here.

Related Links:

  • Association between Rare Variants in AP4E1, a Component of Intracellular Trafficking, and Persistent Stuttering (abstract)
  • Mucolipidosis types II and III and non-syndromic stuttering are associated with different variants in the same genes (abstract)
  • Towards an animal model of stuttering; Mice with mutations in the lysosomal enzyme sorting pathway have abnormal vocalizations similar to humans who stutter (abstract)
  • What Causes Stuttering with Dr. Dennis Drayna from the NIH (StutterTalk Ep. 560)
  • Ask. Dr. Dennis Drayna from the NIH about Genetics and Stuttering (StutterTalk Ep. 500)
  • NIH researchers pinpoint additional gene tied to persistent stuttering (link)
  • How NIDCD research is leading to an understanding of stuttering (videocast featuring Dr. Drayna)
  • Did Neanderthals Stutter? – with Dr. Dennis Drayna from the NIH (StutterTalk Ep.  378)
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16 Dec 2015

What Causes Stuttering with Dr. Dennis Drayna from the NIH (Ep. 560)

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stuttering, StutterTalk
Dennis Drayna, Ph.D., Senior Investigator, National Institutes of Health

What causes stuttering is a question that professionals and others in the stuttering community are frequently called upon to answer. Today on StutterTalk we ask Dr. Dennis Drayna how he responds when parents ask this question. Dr. Drayna reports that a fourth stuttering gene has been found and that scientists may not be able to account for upwards of 12-20% of stuttering cases.

Dennis Drayna, Ph.D., is Senior Investigator at the National Institute on Deafness and Other Communication Disorders at the National Institutes of Health (NIH). Read more about Dr. Drayna at the NIH website here. Dr. Drayna’s other StutterTalk appearances are archived here.

Related Episodes:

  • What Causes Stuttering with Dr. Mark Onslow from ASRC (Ep. 558)
  • Ask. Dr. Dennis Drayna from the NIH about Genetics and Stuttering (StutterTalk Ep. 500)
  • Did Neanderthals Stutter? – with Dr. Dennis Drayna from the NIH (StutterTalk Ep.  378)

Related Links:

  • Association between Rare Variants in AP4E1, a Component of Intracellular Trafficking, and Persistent Stuttering (abstract)
  • Mucolipidosis types II and III and non-syndromic stuttering are associated with different variants in the same genes (abstract)
  • NIH researchers pinpoint additional gene tied to persistent stuttering (link)
  • How NIDCD research is leading to an understanding of stuttering (videocast featuring Dr. Drayna)
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