20 Jun 2016

Not About Me Without Me (Ep. 583)

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stuttering, StutterTalkBob Quesal and Joe Klein join Peter Reitzes to respond to Joshua St. Pierre’s criticism of the National Stuttering Association (NSA). Pierre’s criticism stems, in part, from a StutterTalk interview with the NSA’s Chairman, Gerald Maguire, titled The Future of the National Stuttering Association. 

Bob, Joe and Peter discuss a number of topics including stuttering, acceptance, treatment, the search for a cure, eugenics, the role of the National Stuttering Association, Did I Stutter?, responses from people who stutter to Josh’s post and much more. In response to Josh’s post and to the work of Did I Stutter?, it is pointed out that the very folks preaching some version of “not about me without me” are perhaps in need of the very same reminder.

Robert Quesal, Ph.D., CCC-SLP is a professor emeritus of Communication Sciences and Disorders at Western Illinois University, a person who stutters, a fellow of the American Speech-Language-Hearing Association and a retired Board Certified Specialist in Fluency and Fluency Disorders.

Joe Klein, Ph.D, CCC-SLP is a person who stutters and an assistant professor in Appalachian State University’s Department of Communication Sciences and Disorders.

Links:

  • Barry Yeoman’s keynote address from the Past, Present and Future of Stuttering Conference (video/text)
  • Dean William’s A Point of View about Stuttering (abstract/partial view)
  • A Tribute to Dean Williams by Robert Quesal
  • The Construction of the Disabled Speaker: Locating Stuttering in Disability Studies by Joshua St. Pierrre (full text)
  • Stuttering, Activism, Disability, Ableism and Informed Consent (StutterTalk Ep. 483)
  • Honest Speech and Stuttering Hospitably (StutterTalk Ep. 488)
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11 Jun 2016

The Physical Exhaustion of Stuttering (Ep. 582)

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stuttering, StutterTalk
Sarah Berkowitz

Sarah Berkowitz joins Peter Reitzes to discuss the physical exhaustion of stuttering.

This conversation stems from a post Ms. Berkowitz made at Stuttering Arena in which she said, “Does anyone else ever feel physically exhausted from their stutter? Sometimes I feel like I just ran a marathon.”

Other topics include how and why telling your teacher about stuttering may be helpful, an amazing idea Ms. Berkowitz has to raise stuttering awareness by offering people who stutter the option to have stuttering listed on driver’s licenses and identification cards, her work with the The Stuttering Association for the Young (SAY), how she uses “phrasing” to help manage stuttering and so much more.

When discussing the physical exhaustion of stuttering, Ms. Berkowitz is asked about the following statement from Did I Stutter?

“Stuttering is only a problem—in fact is only abnormal—because our culture places so much value on efficiency and self-mastery. Stuttering breaks communication only because ableist notions have already decided how fast and smooth a person must speak to be heard and taken seriously.”

Ms. Berkowitz responded:

“I completely disagree with that statement. Stuttering is a problem in itself. We know stuttering is a real diagnosable disorder with a cause and that is not caused by society’s pressure to decide how fast or slow a stutterer should speak. Stuttering itself is separate from what society believes someone should sound like…That makes me feel like people are denying that stuttering is a real problem.”

Sarah Berkowitz is a 17 year old senior at Adlai E Stevenson High School. Sarah aims for a career working with children with special needs. She is one of the founding Board members of The Stuttering Association For the Young’s Chicago chapter. Recently Sarah performed at SAY’s 14th annual benefit gala and is one of the authors of SAY: Storytellers Vol. 1.

Links:

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30 May 2016

A Call to Action: Moving Beyond ‘Stuttering is Okay’ (Ep. 581)

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stuttering, StutterTalkRoisin McManus and Caryn Herring of the StutterTalk B Team join Peter Reitzes to discuss the huge success of the NYC stuttering conference The Past, The Present and Future of Stuttering. Today’s topics emanate from this workshop.

We discuss Barry Yeoman’s amazing keynote address including topics he raises such as the juncture of “we need a cure and we are the cure” and his hope that “stuttering awareness” becomes “part of workplace diversity training because we [people who stutter] put it there.” Other topics discussed include the language around stuttering such as “pathology”, moving beyond ‘stuttering is okay’ into activism for people who stutter, becoming aware of not participating in the stigmatizing of stuttering and so much more.


Caryn Herring is a person who stutters and a speech-language pathologist, currently pursuing her PhD at The University of Pittsburgh. Caryn is also an adjunct clinical instructor at Duquesne University, supervising graduate students and teaching the Stuttering Course. She is an active member of numerous stuttering organizations.

Roisin McManus lives in New York City and has co-led the Brooklyn Chapter of the National Stuttering Association for the past 5 years. She is an occasional StutterTalk host, lead planner of the 20-Something’s Program for the NSA/ISA World Congress in Atlanta this July, and doesn’t mind being referred to as a “stutterer.” She works as an emergency room nurse and recently graduated from New York University as an acute care & palliative care nurse practitioner.

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23 May 2016

Lidcombe Program Outcomes in a Student-Led Stuttering Clinic (Ep. 580)

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Michelle Swift, PhD, Finders University
Michelle Swift, PhD, Flinders University

Dr. Michelle Swift joins Peter Reitzes to discuss her study “Case file audit of Lidcombe program outcomes in a student-led stuttering clinic.” This research is the focus of much conversation right now in the stuttering community.

While the study reports that student clinicians “can achieve the same short-term treatment outcomes for children who stutter using the Lidcombe Program as those reported in the current published literature,” the study also reports that a small majority of families dropped out of treatment and that, on average, student clinicians needed more sessions per family to achieve positive outcomes. Dr. Swift is asked if other treatments should be used at times instead of Lidcombe or integrated with Lidcombe. Dr. Swift suggests that one possible reason for the high drop out rates is that families sometimes have to switch student clinicians during treatment. At the end of today’s episode Dr. Swift is asked to consider the possibility that such research may lead some to question wether students are qualified to treat preschoolers who stutter with Lidcombe.

Michelle Swift, PhD, is a lecturer and clinical educator in fluency disorders for the Flinders University Speech Pathology program in Adelaide, South Australia. Dr. Swift is co-author of the new and much discussed study, Case file audit of Lidcombe program outcomes in a student-led stuttering clinic. The study is published in the International Journal of Speech-Language Pathology.

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15 May 2016

Stuttering and Insurance Reimbursement (Ep. 579)

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stuttering, StutterTalk
Katie Gore MA, CCC-SLP

Katie Gore joins Peter Reitzes to discuss stuttering and insurance reimbursement. Ms. Gore is asked about general health care terms such as co-pays, “case studies” and victories from her private practice in advocating for clients with their insurance companies, peer-to-peer meetings with insurance companies, how people who stutter and parents may consider advocating for themselves, how speech-language pathologists may consider advocating for clients, pre-authorization with insurance companies, the importance of contacting insurance companies with questions before beginning treatment, using pre-tax income to pay for treatment (such as flexible spending accounts), gap exceptions, diagnostic criteria and codes and so much more.

StutterTalk reports with great pride that Katie Gore has advocated so hard for clients that she has actually, on occasion, been informed by insurance companies that she has “maxed out” in the number of letters she is aloud to submit on a client’s behalf. Even so, when this occurs, Katie continues to advocate for her clients by assisting them in writing letters to their insurance companies.

Special thanks to the great Craig Coleman for recommending Katie Gore for today’s topic.

Katie Gore, MA, CCC-SLP is a speech-language pathologist, Director of Speech IRL and co-leader of the City of Chicago’s chapter of the National Stuttering Association. Ms. Gore made a splash last summer with her post The Australian Budget Lidcombe Proposal Debate: A Primer in Memes.

Links:

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2 May 2016

The Future of the National Stuttering Association with Dr. Gerald Maguire (Ep. 578)

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stuttering, StutterTalk
Dr. Gerald Maguire

Dr. Gerald Maguire, the newly elected Chairman of the National Stuttering Association (NSA), joins Peter Reitzes to discuss the future of the NSA and the role and importance of stuttering self help. On the second half of today’s episode, Dr. Maguire is asked a range of questions about the medical treatment of stuttering.

Dr. Maguire said that in his role as Chairman of the NSA, it is important to “Remember our legacy and at the same time grow for the future. Our mission is simple and bold as we move ahead. Which is essentially meeting the needs of the stuttering community today while searching for the enhanced treatments of tomorrow.” 

Dr. Maguire shared that his vision for the future of the NSA includes enhanced fundraising to support the NSA, providing legal counsel to people who stutter related to discrimination, creating a government relations arm and committee, increasing media outreach and funding for stuttering research with a goal of distributing competitive grants in the millions of dollars of range. Dr. Maguire stated that he wants the NSA to “not only be the leading resource for self help, but for education, advocacy and research.”

When asked about finding a balance between “stuttering is okay” and seeking a cure, Dr. Maguire responded, “I like to say that acceptance and searching for treatments do not need to be mutually exclusive. In my other treatments of brain disorders such as major depressive disorder or bipolar disorder, the individual with the disorder accepts the condition but they also accept the nature of the treatment for the condition – things that they have to do to lead a more functional life and a better outcome…”

Dr. Gerlald Maguire is the new Chairman of the Board of the National Stuttering Association, Chair of Psychiatry in the University of California’s Riverside School of Medicine and a professor of psychiatry, is the Kirkup Center Chair in Stuttering Treatment and considered by many to be the leading authority on the medical treatment of stuttering.

Links:

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